I really hate that I have to write this post. When my mom was diagnosed with pancreatic cancer in May, we didn't know how much time we would have with her. No amount of time was ever going to be enough time. We knew from the doctor that her level of pain would tell us the progression of the cancer. For that reason, I think my mom hid her true level of pain from us. Over the course of the summer, her pain got worse, and she slowly needed pain medication around the clock. Labor Day marked a big drop in her health. Her pain increased, and she had a lot of bad days and nights. She was jaundiced and feeling worse. My mom did not want to start hospice because she viewed them as killers. Everything she saw from friends was that they went to hospice and died soon after. I saw it differently. I saw that there were people there to support and help you live the best possible rest of your days. Either way, I scheduled a hospice nurse to come and meet with my mom on the Friday after Labor Day. She told my mom she could always come back out of hospice if she ended up doing a drug trial. Side note, the drug Daraonrasib is a new 2nd line cancer drug where you have to do a round of chemo first, and then you can take it. My mom was trying to get into a drug trial at Huntsman after her last appointment with her oncologist in August. She could never get a hold of anyone at Huntsman until it was too late.
My mom started morphine when she signed with Applegate Homecare and Hospice. She got pain relief, but as time went on, she became more sleepy. It is such an unfortunate side effect of opioids. She was no longer up for visitors, so Andrea and Lucy made a cute mailbox and put it on the porch with some cards.

The week before my mom passed, she started to get really sleepy and out of it. It was really hard for her to get in and out of bed and even harder to get to the bathroom. Ali put in some difficult nights on Wednesday and Thursday and was up with my mom and dad. I went on Friday to help and felt like my mom was transitioning and that the end was near. The hospice nurse, Becky Bell, came to visit that day and said the same thing. She said we needed to gather all the family to say their last goodbyes. Friday night, my dad, siblings, and I sat in chairs around my mom's room (she was in her bed) and we reminisced. It was a very bittersweet time. By this time, Charlie was visiting from Texas, so he was there. Betsy came up. Katie was flying in the next morning. That night, Ali and I both got up to help my mom a few times, but every time she woke up, she was so miserable. She was ready to go, and when she woke up, she would ask if she was still here. My Dad, my siblings, and some nieces gathered Saturday morning around 11:00am to say our goodbyes. Marshall, Lynnlee, and Kade made it around 12:00 and said their goodbyes. We all sat around the room reminiscing. Kasey gave my mom a blessing to release her. We continued to take turns being by her side. That night, James, Tag, and Sienna drove up and said their goodbyes. I was so grateful that my whole family had time to say goodbye before she passed. The night my dad, siblings, and I sat around the room and reminisced some more. I played some of her favorite songs. Lynnlee wanted to stay the night, but Marshall took the others home. When it was time for bed, Kasey headed back home. Katie was exhausted from getting up early, so she went to bed, and Charlie did too. My mom was snoring loudly and had the death rattle, and it upset my dad, so he went to the basement. I wanted to stay by her side. Betsy made a bed on the floor. Ali was sleeping on the sofa chair on the side of the room.


I stayed with my mom until about 4:00 am and then I was so exhausted. Katie had some in around 3:45 and was sitting there with us. I got on to ChatGPT, typed in all of my mom's symptoms, and asked how much longer she had. It said it could go on for hours and possibly even another day. I felt so tired hearing that since I hadn't gotten any sleep. In my sleepy mind, I thought I could go to sleep for a few hours and then come back to her side with more energy. Her breathing would slow at times, but only for a few minutes, then it would return to 20 breaths per minute. It was so difficult to listen to, so I went to the twin room and lay down. An hour later, Ali came and woke me to tell me that my mom had passed. I jumped up and went to her side. It was silent, which stood out so much compared to the loud breathing she had been doing. My sisters and I all cried together. Then we called Kasey and told Charlie and my dad. I called Applegate and the mortuary. We all sat around the room and felt peace. We were sad, but it was amazing how peaceful we felt.
It took about an hour and a half for the hospice nurse to get there. Then another half hour for the mortuary. That is where we all got really emotional again. When they took her away we all cried so hard. Lynnlee woke up after that and we cried together. Then I went and laid down because I was so tired and sad. It was so depressing. That whole day was just blah and sad. We watched church on TV and the priests brought the sacrament. Then we had a family dinner that was planned the Wednesday prior. It was hard but good.
When I came home that night I had the craziest mix of emotions. Marshall was busy packing James. I knew I needed to shift my focus to helping James get ready but I just felt so sad.
Monday afternoon my friend Shannon brought these roses to me. It was so thoughtful. Shannon owns the Midway Bakery and my mom met her and loved going to her bakery. She talked to Shannon every time she went. Shannon also lost her mom to cancer so she understands.
It's been hard to process everything with so much going on. Sending James off, being in graduate school, and troubles at Lowry Doors, there's no time to recover because I'm still in crisis mode. I know my mom was in a lot of pain and so I am glad she is not suffering anymore. It is just really unfortunate that she had to have pancreatic cancer in the first place.
I really wanted to be there when she passed. I have to accept that it didn't happen. I was sitting by her side for more than 6 hours, and so if it was meant to be, it would have happened. Then, I left her side, and it happened while Katie was there. I can't dwell on that or let it bother me.
I have to focus on the positives. At least it happened on Sunday, not on Monday or Tuesday, when I needed to be with James. At least I had 4 months with my mom and not 10 days or 6 weeks like some experience with pancreatic cancer. I am glad it was on a weekend so my kids could all be there to say goodbye. I'm grateful I was at least in her house, down the hall, and could be there soon after.