For the last few years we have been hearing about the Single Ventricle Clinic or Uplift when we got to Lynnlee's annual check ups. The doctor is always good about letting us know what to keep on our radar. This year Lynnlee had her first experience with it. She had two days of testing at the U of U and Primary Children's Medical Center. Then a third days was spent meeting with doctors and going over results.
She had ultrasounds to check her liver and kidneys which are often affected by the Fontan surgery which she had ten years ago! The Fontan surgery was the final step of rerouting her blood from the right side of her heart and instead it goes directly to her lungs. Because of this there is a back up of blood in the liver.
She had labs done to check her kidney function and liver function, as well as bone health, and over all labs to check electrolytes, platelets and cells.
She had an echocargiogram, EKG, and DXA scan.
While we were waiting to see the doctors she was given this cute stuffed animal from a volunteer taking around a prize to each patient.
Everything came back normal for Lynnlee. She has some liver fibrosis but it isn't worrisome at this point and it is normal for her circulation. Everything else looks good for now. We have learned that the purpose of this clinic is to catch things before they get worse. Usually there are not symptoms and by the time the symptoms show the problem has gotten out of hand. So Lynnlee will have this clinic every year now and she grows and matures into an adult.
We had lunch at the hospital and then stopped at Coldstone in Sugar House on the way home.
