Home!

We were able to come home today. Lynnlee gained 3 ounces and her bilirubin level came down. It's so good to be home and fun to have our whole family together!

Thank you for all of your prayers!!! We have been so blessed the last 2 weeks!

Another Day

We stayed at the hospital last night with Lynnlee so I didn't post an update yesterday. We were hoping to come home today but it looks like we will be staying another day.

She has been losing weight instead of gaining and her bilirubin level has been going up. The doctor wants to see that she is gaining weight and that the bilirubin doesn't continue to increase before she sends her home.

It's hard to be here another day when I was really looking forward to brining her home but it's more important that we bring her home when she's ready. Hopefully she eats well today and the bilirubin doesn't increase!

Sunday

Lynnlee is doing so well that she was able to be moved from the Cardiac ICU to the Surgical Floor. One step closer to home! The doctor said she should be able to come home Monday or Tuesday!
James was able to meet his little sister for the first time! He is such a busy boy he didn't care to spend too much time by her but he did give her a little kiss.

Saturday

Lynnlee has done really well today. She came off the ventilator, had all of her tubes removed, and started to eat from a bottle! It was really fun to be able to hold her again.

Un-Orphaned

Yeah! We have officially been Un-Orphaned! James now has Grandparents he can actually visit and not just see on the computer. Great to have you home Mom and Dad!

Success!

The surgery was successful! They were able to repair what they needed to and she handled it very well!She will stay on the ventilator tonight so she can rest and heal. Then tomorrow they will try to get her breathing on her own.

It is amazing how small her incision is. It's under her left arm pit and so she should have a quick recovery. I feel so blessed that everything has gone so well! Thank you all for your prayers!


On a side note my parents returned home from their mission today! It is so nice to have them home! I will include a picture from the airport in my next post.

Surgery Today

Lynnlee is going through her first surgery today. It was originally scheduled for Monday, but because she is doing so well, the Doctors and Surgeons decided to bump it up to today. Which means we should be able to get her home a few days earlier now!

The procedure they are doing today is banding the pulmonary artery as depicted in the image and description below.

Pulmonary Artery Band
Doctors place a band around the Pulmonary Artery to restrict the blood flow going to the lungs called a Pulmonary Artery Band. This limits the amount of blood sent to the lungs making it less congested. http://www.childrensheartinstitute.org/educate/defects/atriovn2.htm

Just in review for everyone, this procedure is in preparation for other surgeries that Lynnlee will need in upcoming months and years because of her Tricuspid Atresia. A good site that I have found to explain this condition and processes is found here: http://www.americanheart.org/presenter.jhtml?identifier=1310

Again we would like to thank everyone for their prayers and support, and we'd like to thank all the nurses and Doctors too, with the combination of the two our little Lynnlee is being well watched over.

Thursday

Today's update is in pictures. I took being able to hold her for the first few days for granted. Now that she's off the ventilator we've been able to hold her again. It felt so good. She's our little angel.

It's fun to see all of the faces newborns make while they are asleep. Marshall caught this smile on camera today. Lynnlee's dimples remind me of my mom's dimples.

The patch on her forhead measures her blood flow.